Showing posts with label Pulmonology. Show all posts
Showing posts with label Pulmonology. Show all posts

Tuesday, August 22, 2017

Sometimes Even Superman Needs A Little Help

Even Superman Needs A Little Help
While at the Pulmonary Department, one of the requests from the ENT was for the doctor to "Maximize Pulmonary Function". The Pulmonologists reported that this would not be possible given his airway...however what we could try is to include nebulized hypertonic saline treatments to his routine.

Mando was excited to get a new device. His nebulizer at home dated back to his birth and if you want to talk about things that were not optimal, his old nebulizer was one.

So we left Boston, with no testing done, but a new treatment that gave new hope. The doctor cautioned us about some problems we could encounter with these treatments.

Optimally, a high-frequency chest wall oscillation inflatable vest would be recommended, but that would require a CT scan and we did not have one available.

We take what we can and chalk the rest up to a learning experience. A big sigh...NEXT TIME. A  tomorrow filled with follow up calls on how to smooth the communication out between parties.

We try something new in hopes it helps Mando, our Superman
Breathe a little easier.



Friday, August 18, 2017

Poor Communication Likely Root Cause of All the World's Problems

Contrary to what you have been told, smoking is NOT the cause of all the problems on Earth. Though popular belief blames smoking for everything from halitosis to inflation, I think it's evil has been unfairly notarized.

If you want to pick out today's Big Bad Wolf, in my opinion, it would be poor communication. I should point out that I had an English professor that once wrote on one of my papers to never write "In my opinion".  He said it weakened my argument and I should just come out and say what I mean. I guess that was his opinion.

IMO. That's the first problem. For the longest time, I read that as Eemoe, and had no idea what it meant. Why ? Because I am a GROWN UP.  Now that sounds rude, right? That's because I am typing and you cannot hear my tone of voice or see my gestures. So much can be misinterpreted by the written word. By GROWN UP, I actually mean OLD. OLD-Once Loved Disco, Yeah, THAT Old.

Language barriers resulting from a variety of differences in our backgrounds is one part of the problem.

Communication or the lack thereof becomes particularly problemsome in our relationships. Whether it be with our partners, our family, our friends, our neighbors, our coworkers, or our business associates you can rest assure when problems arise there has been a breakdown in the line of communication.

Honest and direct communication is another part of the problem as is follow through with communication.

 Remember the telephone game as a kid? Well, perhaps the people that Once Loved Disco do. The message you start to relay is seldom the message received after it is exchanged through many parties. I would say today that many messages seldom reach their final destination.

Our messages get lost in an ocean of other messages and never seen or heard from again.

Our Institutions illustrate this on a grand scale from Education to Government, to Every Industry including Healthcare.

When I gave birth to Mando, I was on emergency medical leave from Grad School. I was going to be a social worker at the time. A professor from my school called to check-in on me. I spewed my frustration of the current management of both Mine and my baby's healthcare. I was new to the game then and I was astounded. The professor told me that the way that our healthcare system is run results in the fatalities that would be the equivalent of a major plane crash every day of the year. Completely unacceptable and completely avoidable...The culprit..NOT CIGARETTES.Communication errors. I don't know if it was fact or his opinion...but I believed him.

When Mando and I arrive at Boston on Tuesday for our surgical clearance from the pediatric pulmonary department everything would have been just dandy except for the complete breakdown in...you got it...communication.

I had spent numerous phone calls arranging a prior approval and secured a number to call to ensure all testing needed at the visit would be included on that approval. When I arrived the approval was canceled, the insurance company listed wasn't mine, the wrong primary care doctor was listed, as well as the wrong referring doctor. None of the chest x-rays or ct scans were sent from the oncologist's either. When Boston tried to call the insurance company and the oncologist they got answering machines.

Mando could not have his airway clearance test done nor any other tests for that matter. We drove 3 hours to one of the best pulmonologists in the nation at the number one leading children's hospital and were stopped dead in our tracks because messages didn't get through.

I wasn't even angry. This has become so commonplace its cliche.
Mando awaiting surgical clearance


We have the latest technology. The brightest and best educated.  The best medicines and the advanced research. Yet we can't get a fax sent or a phone answered.

Hate the smokers if you will but if you really want to save lives lets all learn how to fix this blatant ongoing communication problem. IMO, of course.



Thursday, August 10, 2017

Dammit..Where did I put my Wonder Woman cape?

Dr. Haver's office in Boston called to tell me I have an appointment on Tuesday the 15th in Boston for pulmonary surgical clearance.

 I already have an appointment with Dr. Boucher at Albany Medical Center. Plus this is the day to have the follow-up PCR drawn and EKG.

Dr. Haver's office told me I could come tomorrow if it would be easier,
at the Waltham office, that's only slightly farther away than Boston.

HA!

While at they want me to do the prior approval...they gave me the NPI number and all...

I think I'll wait until after I finish cooking dinner...